The EU communication on rare diseases was adopted today at the Council of Health Ministers. The decision basically means that the countries have agreed to adopt national plans or strategies for rare diseases before the end of 2013. The aim is also that research should be promoted and a better infrastructure for rare diseases treatments should be created. Identifying Centres of Expertise will be key in this process.
What I find the most interesting is the decision to”organise healthcare pathways for patients”. Also cross border if needed. It’s a modern approach that will be interesting to see what it results in. For more info check the EU Commission website.
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